← All cohorts · COVID-19 vaccine (mRNA / spike-based) cohorts
Post-Vac-Syndrom Deutschland patient survey
source record (JSON) · schema v2.0.0 · CC BY 4.0
Flags: grey literature not peer-reviewed patient-reported self-selected no control unverified source — read the observations and design fields with these caveats in mind.
Design notes & limitations. Grey-literature patient-organisation survey (n=777, Feb-Jun 2022) of people reporting post-vaccination symptoms in Germany. Not peer-reviewed and with no DOI/PMID, so it is admitted only as a flagged grey-literature source (allowed by a URL-only publication record) to represent the patient-advocacy end of the spectrum honestly. Most figures are subgroup percentages (e.g. among affected women); onset was within one week in 57% and within two weeks in a further 21%. Prevalence figures cannot be interpreted as population estimates.
Identity & trigger
- Cohort id
postvac-germany-survey- Aliases
- PVS Deutschland Umfrage
- Outbreak / event
- COVID-19 vaccination campaign (2021-)
- Pathogen
- COVID-19 vaccine (mRNA / spike-based) (Vaccine)
- Exposure ascertainment
- self report
Design
- Design
- Survey
- Denominator defined
- No
- Denominator method
- n/r
- Recruitment
- patient organisation
- Time zero
- COVID-19 vaccination; self-reported post-vaccination symptoms (week)
- Control group
- None
Size & attrition
- Enrolled
- 777
- Analysed / enrolled
- 777/777 (100%)
- Max follow-up (months)
- 6
Biospecimens
- Specimens
- No
- Types
- none
- Acute-phase specimens
- N/A
- Biobank
- N/A
- External access
- open application
Observations (1)
Symptoms
57% Proportion
- Measure
- Paraesthesia / numbness sym:paresthesia
- As worded
- “tingling / numbness sensations (most common symptom; reported by women)”
- Population
- subgroup · denominator Symptomatic subset · N=measured, not reported
- Timing
- 6 mo (3-6 mo) · ref Current
- Method
- Open-ended report
- Comparator
- no comparator
- Comparability signature
- 66e703339c — measure sym:paresthesia · Open-ended report · ref Current · denom Symptomatic subset · 3-6 mo · Proportion
- Provenance
- Survey results page (tingling/numbness 57% of women) · Manual · verified OSMF research-tracker on 2026-07-20
Publications
- Post-Vac-Syndrom Deutschland (patient initiative) (2022). Post-Vac-Syndrom Deutschland: Ergebnisse der Betroffenen-Umfrage (patient survey results). . source grey literature primary
Provenance & verification
- Registration
- n/r
- Funders
- Post-Vac-Syndrom Deutschland (patient initiative)
- Related cohorts
- vitae-survey (Sibling analysis), yale-listen-pvs (Sibling analysis)
- Symptom-inventory scope
- Targeted panel
- Last verified
- 2026-07-20 — OSMF research-tracker (verified against source webpage)