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Amsterdam Long COVID muscle-biopsy PEM cohort (Appelman)

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Design notes & limitations. Small longitudinal case-control study (25 long COVID patients with PEM vs 21 healthy controls) and the only cohort in this database with tissue-level objective measures: a two-day cardiopulmonary exercise test to induce post-exertional malaise, with skeletal muscle biopsies before and after. It documented exercise-induced myopathy, metabolic disturbance, and amyloid-containing deposits that worsened after PEM. Included for the objective-measures and PEM-assessment gap matrices rather than for symptom prevalence; not denominator-defined for prevalence estimation.

Identity & trigger

Cohort id
appelman-2024-lc-muscle
Aliases
Amsterdam UMC long COVID exercise/biopsy study
Outbreak / event
COVID-19 pandemic
Pathogen
SARS-CoV-2 (Virus)
Exposure ascertainment
Mixed

Design

Design
Case-control
Denominator defined
No
Denominator method
n/r
Recruitment
outpatient clinic
Time zero
Established long COVID with exertion-triggered post-exertional malaise; assessed before and after an exercise challenge (undefined)
Control group
Healthy convenience

Size & attrition

Enrolled
46
Analysed / enrolled
46/46 (100%)
Max follow-up (months)
n/r

Biospecimens

Specimens
Yes
Types
muscle_tissue, whole_blood, serum
Acute-phase specimens
No
Biobank
Unknown
External access
collaboration only

Observations (1)

Physiologic / tissue

Muscle biopsies after a two-day CPET-induced post-exertional malaise showed severe exercise-induced myopathy (atrophic fibres, focal necrosis), local and systemic metabolic disturbance, and amyloid-containing deposits; abnormalities were worse post-PEM than at baseline. No prevalence is reported — this is a mechanistic tissue finding. Qualitative

Measure
Skeletal muscle pathology (biopsy) physio:skeletal-muscle-pathology
As worded
“exercise-induced myopathy, metabolic disturbance and amyloid-containing deposits in skeletal muscle, worsening after post-exertional malaise”
Population
whole cohort · denominator Assessed at timepoint · N=n=25
Timing
None mo (Unspecified) · ref N/A
Method
Physiologic test
Comparator
Healthy convenience: measured, not reported
Comparability signature
9219e1e245 — measure physio:skeletal-muscle-pathology · Physiologic test · ref N/A · denom Assessed at timepoint · Unspecified · Qualitative
Provenance
Abstract / Results (muscle biopsy pre/post exercise) · Manual · verified OSMF research-tracker (web-verified against source) on 2026-07-20

Publications

Provenance & verification

Registration
NCT05225688
Funders
Amsterdam UMC, Stichting Long COVID
Related cohorts
none
Symptom-inventory scope
Single domain
Last verified
2026-07-20 — OSMF research-tracker (web-verified against source)